It took me a while to comprehend the early hullabaloo around social distancing. Having long ago already built a life around suddenly not being able to leave the house for 3-6 weeks my initial response was: “Wha? Doesn’t everybody have a five week reserve of toilet paper?” In weirdly good(?) timing, something went terribly wrong … More What Chronic Illness Has Taught Me Might Help You Stay Sane in a Pandemic
I don’t think people realize chronic illnesses can kill just as readily as the terminal ones. Their quality of life just gets so bad they suicide. So, yeah, I nearly died this past year (pro tip: “When you are going through hell, keep going.” ~ Churchill). The biggest tragedy is when strong, emotionally competent people … More When the Strong Break
I broke my brain a few weeks ago, a remarkably frightening experience. Now, I’ve had cognitive burnout before, it’s pulled me out of school on many occasions: an inability to study or take the ideas in my head and find words for them. This was nothing like that. My brain suddenly seemed incapable of any … More Adapt or Die
Some days are hard (a lot of them lately). I’m not much for posting/tweeting about that for a number of reasons. Firstly ’cause I think the internet if plenty full of whiny complaint and I don’t need to add to it; but probably mainly because when things get rough I tend to turtle, turn in … More Pity Party
So, after doing the WRONG thing for 83 days, I now have 17 days to come to terms with over two decades of chronic illness (with acceptance not resignation) and find a way to build a meaningful life within my limitations. Nothing like a hot deadline to motivate a girl!